Well, the day of surgery most people sleep the majority of the day. As you probably read in my Surgery part 2 post, I was awake most of the day 🙂 It’s helpful to have people in the morning and the evening when you’re getting dressed and bathing. Here are some subject-specific ideas that will hopefully give you an idea of what to expect!
At the hospital, surgery happens every day, multiple times a day. For the patient, it happens once in a blue moon (for most people). Bottom line: Surgery is a big deal!
I make this point because it’s important for patients to not be afraid to speak up! If you are cold, ask for a blanket… or five blankets! If something doesn’t feel right, or you need an explanation, speak up and ask. The nurses, techs, and surgeons do this every day and it can be easy for them to forget how foreign and frightening the whole experience often feels for patients. It’s important to feel comfortable and in control.
The hospital will have you arrive at least an hour before surgery. Soon thereafter they will have you change into a gown, take your vitals, and begin an IV. Before you know it, you’re fading out. Although I was apparently awake and talking to my surgeon and anesthesiologist, I completely forgot all of it when I woke up.
Last October I had shoulder surgery. Throughout the process, I knew I wanted to share what I learned on the blog because I wished I had known more going into it. I searched for information online and didn’t find a whole lot, so I hope this post will help serve as an informational guide before you have your procedure. The “how-to” of shoulder surgery that the doctors don’t give.
*Before I begin, I need to note that my surgery was a very different procedure than most shoulder surgeries. I had surgery to tighten the joint, because I was having consistent subluxations (partial dislocations) and the joint was completely unstable. After suffering for nearly six years with many restless nights, I finally decided there were no other options. The goal of this surgery was to actually limit my range of motion, and tighten the whole joint. Therefore my recovery time was much slower than a rotator cuff tear, for example. For most shoulder surgeries, the surgeon and therapists want you to be moving it within a week or two. My arm stayed in the sling for over a month. Keep this in mind when reading dates and timeline, as yours may very well be faster.
One of my biggest concerns in preparing for surgery was, how am I going to dress myself every day on my own? My mom and boyfriend are at work early, so am I just going to stay in my PJs all day? Not the healthiest thing for your mental state. You don’t realize how important this ADL (activity of daily life) is until you first hand are unable to do it! I talked to my friend who is an OT and her recommendation was to cut up some large shirts I didn’t care about and also just buy some bigger, stretchier shirts that I would be able to get over everything.
This post should really be “suggestions of a few things to do” because the options here are nearly endless. If you have physical limitations, and live in Tucson or are visiting, there are all kinds of great activities for recreation. Those of us who are residents are lucky to live in a very accommodating city! *Note – it is always possible something has changed and although I try and keep this list updated, prices and accommodations change regularly, so always call first.
It’s here! The countdown to rare disease day comes to an end. However, since I started the 100 Positive Days very late, I will keep going on into March, April, and May! In any case, I thought I should stop and take a minute to share some education about the rare illnesses that I have, and hopefully bring some awareness.
Ehlers-Danlos (EDS) is a genetic connective tissue disorder, which can present itself in a variety of forms or types, including a vascular form which can be life-threatening. However, I have type III, also known as “hypermobile” form. They call us “zebras,” – since we are often medically complicated and hard to figure out – hence the zebra on my blog banner. Hypermobile EDS, also often identified as “Joint Hypermobility Syndrome”, affects 1 in 10,000 people. What it means for me, is I do not have enough collagen and my joints are very loose and stretchy. I’m really good at yoga and gymnastics but should never be allowed to do them because there’s a good chance my joints will dislocate or at least sublux (partially dislocate). I have severe joint pain and my shoulders often sublux, creating further trauma. EDS is the cause of many of my other issues, including two I will mention below, so diagnosis is important to help understand other symptoms. Often a rheumatologist or geneticist can help make the diagnosis, which is typically made from physical manipulations (beighton scale) and symptoms, rather than genetic testing.
Sooo the color for gastroparesis awareness just happens to be the same as celiac! Green. Cool. Anyways “they” (the powers that be) decided we should all wear it on Valentines Day. My question: Why valentines day? When everyone is wearing pink or red (or if you’re on my campus, today is a huge basketball game so they are all covered in blue). Is it because we have awful digestive tracts that makes dating awkward? Is it because most associate valentines with candy which might make us sick? Who knows. Anyways, I’m all about awareness, so here it is!
Rich with Life 